Internet support forums & Web sites
A Heartbreaking Choice - Grief support after terminating a pregnancy for medical reasons - Yuku Discussion Group
Baby Center - Termination for Medical Reasons message board
Potters Syndrome - Support Site
Center for Loss in Multiple Birth
(Climb) - Loss support for Selective Reduction and loss of twins or multiples
The Compassionate Friends - Grief support after the death of a child
M.I.S.S. Foundation -
Providing crisis support after the death of a child from any cause
Share Pregnancy & Infant
Loss Support, Inc. - To serve those touched by the death of a baby
Grief Watch - Resources
for bereaved families and professional caregivers
National Support Groups
Genetic Alliance
4301 Connecticut Avenue, NW, Suite 404, Washington, DC 20008-2304
(202) 966-5557, fax: (202) 966-8553, Toll-Free Helpline: (800) 336-GENE (4363)
email: info@geneticalliance.org. Has a listing of support groups for nearly every type of
genetic problem.
Center for Loss and Life Transition
3735 Broken Bow Road, Ft. Collins, CO 80526, (303) 226-6050
CHERUBS: The Association
of Congenital Diaphragmatic Hernia Research, Advocacy, and Support
PO Box 1150, Creedmoor, NC 27522, (919) 693-8158, e-mail:
cherubs@gloryroad.net
March of Dimes: Birth Defects
Foundation, 1275 Mamaroneck Avenue, White Plains, NY 10605
National Organization for Rare Disorders. Inc.
(NORD)
P.O. Box 8923, New Fairfield, CT 06812-8923, (203) 746-6518, Fax: (203) 746-6481, Toll-Free: (800) 999-6673, email:
orphan@rarediseases.org
A Place to Remember
Support materials and resources for those who have been touched by a crisis in pregnancy or the death of a baby
Pregnancy and Infant Loss Center
1421 E. Wayzata Blvd, #30, Wayzata, MN 55391, (612) 473-9372
Support for Prenatal Decision
P.O. Box 7523, Redlands, CA 92375
RTS Bereavement Services
1910 South Avenue, LaCrosse, WI 54601, (608) 791-4747, (800) 362-9567
SHARE, Pregnancy and Infant Loss, Inc.
St. Joseph's Health Center, 300 First Capitol Drive, St. Charles, MO 63301, (314) 947-6164, (800) 821-6819
Remembering Our Babies -
Pregnancy and Infant Loss Remembrance Day
Overseas Support Groups
Induction for Fetal Abnormality (I.F.F.A.)
PO Box 39, Waratah, NSW 2298, Australia
Support after Fetal Diagnosis of Abnormality (SAFDA)
Royal Hospital for Women, 188 Oxford Street, Paddington, NSW 2021, Australia.
Contact Sheila Sim (02) 339-4225 or Many O'Reilly (02) 438-7324
ARC - Antenatal Results and
Choices
73-75 Charlotte Street, London, W1P 1LB
Helpline: 0171 631-0285, Admin: 0171 631-0280
From outside the UK, please call:
0044 171 631-0285/0280.
The Splash Project
- The Splash Project
c/o Culdrose Community Centre
Hibernia Road, Helston, Cornwall, UK TR13 8DJ
email: support@thesplashproject.org
Local Counselors and Support Groups
Albany, New York area: St. Peter's Hospital
Contact Maureen Cavanagh, (518) 525-1388.
Ann Arbor, Michigan area: SHARING - Support and Healing After Difficult Decisions
Open meeting held every third Wednesday of the month from
6:30 to 8:30 p.m. in Ann Arbor at the University of Michigan - East Ann Arbor Health Center. RSVP required.
Call (734)-615-0322 or (734) 936-9758
Atlanta area: A Time to Heal
Northside Hospital, 1000 Johnson Ferry Road, Atlanta, GA 30342.
Contact Cathy Wing or Barbara Douglas at
(404) 851-8177.
Austin, Texas area: HOPE (Helping Ourselves through this Pregnancy Experience)
Applied Genetics, Inc., Contact Melanie Casal at (512) 443-4363.
Boston area: G.O.A.L. (Going on After Loss)
Brigham and Women's Hospital, 75 Francis Street, Boston, MA 02115.
Contact Laura Lubetsky, L.I.C.S.W. at (617) 732-5500 ext. 32214.
Boston area: Boston Metrowest: Listening, Reflecting, Healing
Individual and group support services
Contact Mary-Frances Garber, MS,
CGC at (781) 366-5300
Licensed Genetic Counselor, www.listeningreflectinghealing.com
Chicago area: Support Group for Prenatal Decisions
Evanston Northwestern Healthcare, 2650 Ridge Avenue, Evanston, IL 60201.
To register, Contact Nancy A. Goldin, L.C.S.W., Coordinator for Perinatal Loss, at (708) 570-2883, ngoldin@enh.org.
Group meets the 4th Wednesday of each month from 7:30 9:00 PM.
Cincinnati area: SHARED (Shared Help After Reproductive Decisions)
Children's Medical Center, 3333 Burnet Avenue, Cincinnati, OH 45229-3039.
Contact Martha Walker at (513) 559-4798.
Des Moines, Iowa area: Prenatal Decision Conference
Iowa Methodist Medical Center, 1200 Pleasant, Des Moines, IA 50309.
Contact Linda Bets, Department of Chaplaincy at (515) 241-5845.
East Lansing, Michigan: Genetics Support Group
Michigan State University, B-240 Life Sciences Building, East Lansing, MI 48824.
Contact Tonya Diehn or Susan Selke at (517) 353-2030.
Farmington, Connecticut: HOPE
University of Connecticut Heath Center, Genetics MC-6310, Farmington, CT 06030.
Contact Leslie Ciarleglio, MS or Alicia Craffey, MS
Fayetteville, North Carolina area: SHARE
Fayetteville Diagnostic Center, 1767 Metromedical Drive, Fayette-ville, NC 28304.
Contact (910) 323-2209 on Tue/ Thur or (910) 487-2986 (Mon/ Wed/Fri). FAX (910) 323-9860.
Houston area: Resolution
7400 Fannin #1212, Houston, TX 77054.
Contact Joy Redman, MS, at (800) 543-1346 or (713) 798-9500.
Houston area: Resolution
University of Texas OB/GYN, 6655 Travis #320, Houston, TX 77030.
Contact Patti Furman at (713) 794-5170.
Indianapolis area: Shared Concerns Support Group
Co-sponsored by Indiana University Hospital and Methodist Hospital of Indiana.
Contact Jane Heustis at (317) 929-8153 or Lynn Deardorff (317) 274-1639.
Iowa City, Iowa area: Prenatal Loss Support Group
Duffy and Associates, 1039 Arthur Street, Iowa City, IA 52240.
Contact Alison Milburn at (319) 337-9649.
Lexington, Massachusetts area: After Words
Prenatal Diagnostic Center, 80 Hayden Avenue, Lexington, MA 02173.
Contact Barbara Thayer or Bonnie Braddock at (617) 862-1171.
Long Island, NY area: Mineola, New York - Winthrop University Hospital
259 First St. (516) 663-2288 or (516) 742-2934 Anna Orologio,
A.C.S.W. We provide support groups for AHC and individual counseling.
Los Angeles area: Pregnancy Loss Support Group
2001 S. Barrington Ave, Suite 307, Los Angeles, CA 90225.
Contact Lee Forseter at
(310) 837-5842.
Minneapolis/St. Paul area: Perinatal Center
Abbott Northwestern Hospital, 800 E. 28th Street, Minneapolis, MN 55407.
Contact Joanne O'Leary, Shari Baldinger or Bonnie Hunt at (612) 863-4502.
Mississauga, Ontario, Canada area: Wednesday's Child
RR #2, Erin, ON N0B 1T0.
Contact C. Lynn Wilson at (519) 833-2442
Central New Jersey area (Monmouth and Ocean Counties): HART-Healing And Recovering after Termination
Monmouth Medical Center, 255 3rd Ave.
Long Branch, New Jersey 07740.
Contact Judy Rokeach or Ivy Leight (732) 923-6527.
Summit, New Jersey area: FATE Feelings After the Termination Experience
Center for Human & Molecular Genetics, 90 Bergen Street, Suite 5400,
Newark, NJ 07101.
Contact Gisela Rodriguez at (973) 972-3302, rodriggi@umdnj.edu.
New York City: Painful Choices in Pregnancy Support Groups
30 E. 60th Street, Suite 802, New York.
Contact Joann Paley Galst at (212) 759-2783.
New York State: Winthrop University Hospital
Mineola, New York.
Contact Anna Orologio, ACSW at 516-742-2934.
North York, Ontario, Canada area: North York General Hospital
Department of Clinical Genetics, 4001 Leslie Street, North York, ON M2K 1E1
CANADA.
Contact Andrea Shugar at (416) 756-6345.
Oakland, California area: Beyond Choice, Genetic Support Group
Contact Jeanne Menary, PH.D. (510) 845-4656 or Ann Bourguignon, Genetic
Counselor, (510) 752-6755.
Pasadena, California area: Caring Connection
Contact Wendy Kohlhase at (818) 577-4002 or Alfigen/Genetics Institute at (818) 666-3300.
Philadelphia Area: A Time for Healing
Sunday evenings, 2nd or 3rd of the month, 7-9 pm, 191 Presidential Boulevard, Suite 133-135, North
Building, Bala Cynwyd, Pennsylvania, (215) 955-0605.
Phoenix Area: Phoenix Perinatal Associates
Nicole Weston, MS, Genetic Counselor at (602) 528-0060 x561.
Pittsburgh, Pennsylvania area: Unexpected Choices
Contact Bev Tenenholtz, MS at (412) 578-7346.
Pittsburgh area: Unexpected Choices
320 E. North Avenue, Department of Human Genetics, 11th Floor, South Tower, Allegheny General Hospital,
Pittsburgh, PA 15212.
Contact Darcy L. Thull at (412) 359-6388.
Providence, Rhode Island area: SHaRe (Support, Healing and Reflection)
Contact: Jacky Halliday, Women and Infants Hospital, (401) 453-7510.
Raleigh/Durham/Chapel Hill area: HOPE (Helping Other Parents Endure)
Contact Carla Boor Smith, or DJ Pappas at (919) 966-2229.
Rochester, MN (SE Minnesota and SW Wisconsin area): Mayo Perinatal Loss Support Group
Rochester Methodist Hospital, C/O Jeri Sehl,
3W-20 Eisenberg Building, Rochester MN, 55902, Phone (507) 266-7360.
San Francisco area: California Pacific Medical Center.
Contact Kerstin Spangner, Genetic Counselor, at (415) 600-2628.
Seattle, Washington area: Start Where You Are
UWMC Maternal Health Programs, Seattle WA.
Contact Teresa W., teresaw@u.washington.edu
or 206-598-7561.
Springfield, Massachusetts area: Prenatal Decision Support and Information Group
Baystate Medical Center, Women & Infants' Unit, 759
Chestnut Street, Springfield, MA 01199.
Contact Karen Banta, MSW at (413) 784-5402.
Stanford, California: Surviving Painful Decisions
Genetic Support Group at Stanford Medical Center, Call (415) 723-5198.
Suffern, New York: Good Samaritan Hospital
Rt. 59, Suffern, NY 10901. Contact Pamela Magi, RN at (845) 368-5297. Serves Rockland,
Westchester, Orange, Ulster and Putnam counties in New York state and Bergen and Passaic counties in New Jersey.
Trenton, New Jersey area: Mercer County, NJ and Bucks County, PA areas. Time for Healing
Meets one Sunday per month from 7-9 p.m. at the
Mercer Campus of Capital Health System in Trenton, NJ. Please call coordinator Carolee Watkins, M.S., Genetic Counselor at (609) 394-4072, ext. 2
for more information. No fee. Links by phone with other parents also available.
Williamsville, New York: Precious Lives (Caring Arms Support Circle)
Millard Fillmore Suburban Hospital, 1540 Maple Road, Williamsville,
New York.
Contact Kathleen Skipper, R.N.C. at (716) 568-6653. The group meets every 3rd Tuesday at 7 pm.
Vancouver, British Columbia, Canada area: Empty Cradle
52548 RPO Coquitlam Centre, Coquitlam, BC V3B 7J4 Canada.
Contact Patty Lou
Bryant at (604) 469-1272.
Watertown, New York area: Samaritan Medical
830 Washington Street, Watertown, NY 13601.
Contact Sheila Marie at (315) 785-4184 or
(315) 785-4182.
